I wanted to let you know about an opportunity to participate in a Paleo Diet study. Dr Cordain, author ofThe Paleo Diet is researching the connection between diet and autoimmune illness. He’s looking for volunteers who have an autoimmune disease and have tried a the Paleo Diet for at least two months. The study won’t be overly demanding. It’ll involve an interview, questionnaire, and medical records if you’re willing to provide them (this last part is optional.) Of course everything will be kept confidential. If you’re interested in being part of the study, contact Dr Cordain’s graduate student Trevor Connor ([email protected]). With your help we can show how strong the link is between disease and diet and hopefully help a lot of people live better lives.
I forwarded this to a friend/client that has Ankylosing Spondylitis. He has “converted” to the paleo lifestyle – won’t eliminate his eggs – and, well, this is what he had to say:
“So yesterday I decided to experiment on myself when it comes to inflammation and paleo. With my disease, inflammation = pain/stiffness.
For the last 3 weeks, I have diligently eaten paleo, and have felt really good (after the initial fatigue). I have had very little pain or stiffness in my back. Yesterday I had my 6 week infusion which is usually when I feel the best (at least for the following couple weeks).
Yesterday, I took a day off. I ate as I normally would have (maybe a little worse). I had foods containing gluten and grains. This morning, I felt slightly hung over. Headache, fatigue, all over lousy. But the main thing I have noticed today….My back is stiff and sore. It should not be today. If anything, today should be the best feeling day of the month.
Now, I know there was not a lot of scientific method, or strict variables involved, but it is good enough for me. I know that over the last 3 weeks, I have had very little pain, and today, I feel like I usually do when I am in need of an infusion.
Anyhow, just thought you would be interested to hear that.”
Robb,
On Podcast 52 yesterday you fielded a question on a lady with a missing gall bladder starting at about minute 24 – question #8. My wife is missing hers too, and I’m guessing its hampering her attempt to go paleo.
You recommended a probiotic.The two other supplements you recommended I can’t make heads or tails of:
“nalfood with protease and lipase”
and
“oxfile to emulsify fats”
Help, please!
Nowfoods Super Enzymes
Oxbile
Hi, I was diagnosed by Crohn’s disease March 2009. Finally after many months studying with my boyfriend about nutrition we finally found Paleo-way of eating. From the summer I have been on strict Paleo diet(dairy free, grain free, legume free) and the symptoms are allmost gone. Hopefully I will get the remission some day and get rid of my medication(Asacol).
Is there a true link between Type 2 diabetes and autoimmune disease?
http://endo.endojournals.org/cgi/content/full/146/10/4189
Nice find!
To whom it may concern,
I am very interested in participating in the Paleo Diet research project.
I was diagnosed with chronic fatigue about 14 years ago and have tried various diets to treat my ailments.
I work as a personal trainer I don’t drink or do any drugs and have not for 16 years.
I workout regularly but still have problems managing my fatigue.
I was at one point a raw foodist and then a vegan and now have been eating on the Paleo Diet for about 1 month.
I live in NYC. I look forward to hearing back from you regarding your study.
All the best, John
PS I read the paleo solution and am now reading the paleo diet for athletes
Just emailed to sign up. Looking forward to your thoughts on LP PLA2 test (and the vitamin d / calcification thing).
cheers,
Ashley
Hi there,
I’ve been near paleo (but steadfastly gluten free) for about a year now and it’s taken my rheumatoid arthritis to something that kept me from comfortably moving up half-flights of stairs to being utterly, totally healthy – better than I’ve ever been in my life.
I’d be happy to be involved.
Best – C
The problem with this kind of research is this: If Cordain recruites the participants on Paloe-Blogs he will probably end up with a big selection bias in his data…
Yes, a bias of folks who HAD an autoimmune disease before, do not have it now, all documented medically. This is an attempt to get enough information to justify a clinical trial. Just the starting steps, not the end.
My name is Lisa. I am 43 years old, 5’6″ and weigh 245. I was diagnosed with lupus 2 years ago. I have been leaning towards a paleo diet since Sept 2010, but have not been terribly commited…recently my husband asked me what I wanted for Christmas and I said “a gastric bypass”… Please contact me – I would be interested in participating in your study.
Lisa Janet
Lisa!
Can you shoot an email directly to trevor at that email? Thank you for your interest. We need to get this information out to the broader medical community.
I have multiple autoimmune conditions and have been strict Paleo for about 5mos with excellent results. I am extremely grateful for the work Dr Cordain has done in this area and I am happy to contribute in whatever way I can to help further the science.
I emailed Trevor and he said they would contact me by early December about beginning the questionnaire process.
Right on Kevin, thanks!
I emailed Trevor. I’m an aerialist battling ankylosing spondylitis (5 years). Using paleo right now to manage, but would love to not have to use Humira and NSAIDs. Thanks for pushing forward with this research!!
This is very exciting. I was diagnosed with MS earlier this year and went strictly paleo in April. Be nice to see something other than anecdotal evidence out there.
Thanks for the info Robb! I emailed Trevor and hope I can be of assistance!
I shot an email that way. I was diagnosed with Hashimoto’s Thyroiditis. I have been on the paleo diet for almost 2 years, and my dosage was lowered last year. I’m also likely an undiagnosed Celiac, with a cessation of all symptoms since beginning this.
Good stuff!
Hi,
I don’t know if you still need people. I have had Chronic Fatigue Syndrome/ Fibro for almost 4 years. My problems all started with sinus infections that wouldn’t go away. My doctors kept prescribing me antibiotics and they would never go away. Also, I was on the birth control pill for years. I think both of those things caused me to develop CFS. I’ve tried to treat it naturally, refusing all drugs. I haven’t taken any antibiotics in years. Through my research, I’m also convinced that my CFS is linked to an overgrowth of yeast. I did a CDSA test recently that showed I barely have any beneficial bacteria. So I’ve been so concerned with healing my gut and eating the right foods. I did paleo for a while, but just recently starting going stricter by cutting out eggs, nuts, fruit, and nightshade veggies. I also started taking probiotics, eating small amounts of raw unpasteurized sauerkraut and drinking homemade mineral bone broth. I have noticed a difference when I’m off grains and sugar. I consider them the two evils, although antibiotics are definitely the number one evil.
Thank you,
Amanda
PS- Do you know if raw sauerkraut is okay for an autoimmune paleo diet?
Amanda,
This may sound Gross but google “fecal transplant”
May be a healthy and natural(ish) way to promote healthy gut flora again
All the best
Robb and all. Great site. Love the book.
My gf is suffering from what I think is chronic fatigue syndrome. Had a battery of tests and no obvious (or at least tested for) cause.
She has some fairly bad food allergies before she went cfs. She eats pretty well as a result (although gluten and wheat products are a part of her diet).
So I know you and Andy will recommend
Drop the dairy. Drop the wheat. Drop the nuts. Drop the eggs.
Last two arising out of specific inflammation (her joints hurt most of the time).
As to supplements, Omega 3 must be a given. But what else?
Personally I have a love for the coconut milk and just real coconut but what might help her?
Keep up the good work.
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